Inspiring Amputee Peer-To-Peer First Review Meeting, Hai Lang, Vietnam

Amputee Peer-To-Peer 1st Review Meeting, Hai Lang, Vietnam

One month after a peer-to-peer group in Hai Lang, Vietnam, learned how to use mirror therapy at home to relieve the symptoms of phantom pain, they met to share their progress and the impact of the therapy on their lives.

The impact was profound; a solid model for a network of other peer-to-peer amputee groups to meet in Quang Tri Province, Vietnam.

Most of the amputees said that their pain was improved or reduced from at least 30% up to  80% and are thankful for the therapy. 

Several people revealed that they had drank a lot of alcohol to forget their pain, while others stated that their pain would drive them to anger easily when relating to family and friends. Now, they said, practice with the mirror has helped them in these matters. 

All of the participants look forward to further progress and are highly committed to remain in the project until it is completed in March, 2015. 

According to Nguyen Thanh Phu, the next step for Project Renew is to team up with the Quang Tri Provincial Disabled People's Association to seek resources for expanding the model into the Association's grassroots networks, so that more and more amputees can benefit from this effective, inexpensive treatment. 

Peer-To-Peer Amputee Program Launches in Vietnam

Pham Qui Thi, Ban Advocate, presenting peer-to-peer Mirror Therapy with upper limb amputees

 With a donation of 20 table-top mirrors, ETPP ToolKits translated into Vietnamese and pain scales from End The Pain Project as well as the joint sponsorship of Handicap International and Project Renew, a mirror therapy workshop for twenty amputees in Hai Lang district, Quang Tri Province, Vietnam was kicked off on December 18, 2014.

Cluster munitions survivor Pham Quy Thi presented the concept of mirror therapy at home, followed by an actual mirror therapy session that lasted for 20 minutes supported by Pham Quy Thi and Nguyen Thanh Phu of the Project Renew Mine Action Visitor Center.

The participants were divided into two groups, one with leg amputations, the other with arm amputations.

 four out of the five upper limb amputee participants had positive feedback. They can really feel their missing fingers moving exactly like what existed before.

Lower limb amputee concentrating on a reflection of his intact leg

A man whose leg was amputated, said  he really could see his missing leg in the mirror after many years, and felt as if he can walk with balance.

Only in one case, a woman reported that she could not feel anything.  Later, she said that she misunderstood what the team had told her. Instead of concentrating on the reflected image of her leg, she just looked at her intact leg. It was concluded that this was the reason why,she did not get any reaction during the session.

Participants of the Mirror Therapy Workshop with instructors Mr. Nguyen and Mr. Pham

All the participants were very happy and and committed to following mirror therapy sessions  at home for one month.

Vietnamese Amputee Demonstrates Effective Mirror Therapy at 5th Annual Cluster Munitions Convention in Costa Rica September 5, 2014

Credit: Thao Griffiths

Pham Quy Thi who lost his right hand and part of his right arm to a hidden landmine explosion, made the long journey from Vietnam to the Costa Rican Cluster Munitions Convention to demonstrate the use of ETPP Mirror Therapy as a means to diminish or end Phantom Limb Pain for amputees. Mr. Pham traveled under the auspices of Project Renew, Dong Ha, Quang Tri, Vietnam.  

Credit: Thao Griffiths

Mr. Pham's demonstration totally captivated the attention of the Meeting of States delegates who attended his side event at the Convention on September 5, 2014. For further information about Mr. Pham shedding 36 years of Phantom Limb Pain through Mirror Therapy, please refer to the blog of December 5, 2013.

Pham Quy Thi upper limb amputee sheds 36 years of phantom limb pain with Mirror Therapy

Pham Quy Thi shares his amazing outcome with Robert Johnson PT

On November 23, 2013, Pham Quy Thi, a Vietnamese farmer, did not expect that his chronic phantom limb pain would be reduced just by concentrating on the movements of his intact hand in a mirror for ten minutes. Mr. Pham had lost his right arm in 1977 because of an exploding cluster bomb and suffered chronic pain in his phantom limb since then.

After just ten minutes of using Mirror Therapy, Mr. Pham exclaimed, "This is an amazing therapy! It is my very first time I have the chance to be experienced this and I know it works for me. I surely will bring this home and teach other survivors in my community”.

The fifty-eight-year-old was one of four land mine victims being trained by Robert Johnson of Achieve Orthopedic Rehabilitation and an Associate of End The Pain Project, to administer Mirror Therapy in a newly formed Peer-to-Peer program sponsored by Handicap International. The setting for this training workshop was the Mine Action Visitor Center run by Project RENEW in Dong Ha,Vietnam. 

Le Kien and Robert Johnson use a mirror to reduce Mr. Le's phantom limb pain

Mr. Le Kien was gardening in 1991 and struck a hidden cluster bomb. Not only did Mr. Le lose his left leg, he lost his baby daughter at the same time. Now a 55-year-old carpenter, he is a frequent guest speaker and story-teller at mine risk education programs for local school children.

In 1986, Hoang Xuan Phuong was tampering with an M14 mine also called a gravel mine in the vicinity of a former U.S. base when it exploded. Mr. Hoang was startled when he clearly 'saw' the mirror image of his lost arm. “It is the very first time, I can really recall my memory about my lost limb after more than twenty five years since the day I was amputated in a landmine blast”.

 Rear: Nguyen Thi Huong, Le Kien. Nguyen Xuan Tuan, Hoang Xuan Phuong, Phạm Quý Thí; Front: Phu Nguyen Thanh, Robert Johnson

The four volunteers at the Center also raise awareness of the many unexploded mines in Quang Tri Province and promote and advocate for the full application of the rights of persons with disabilities. 

This group was newly formed by Phu Nguyen Thanh, Facilitator/Support Staff at the Mine Action Visitor Center in August, 2013. Once the quartet have completed their own 30-day mirror therapies, they will go into surrounding communities to help other amputees still suffering phantom limb pain.