ETPP Partners with The Amputee Coalition of British Columbia

A unique partnership has been struck by End The Pain Project and The Amputee Coalition of British Columbia, both serving the needs of amputees.

The mission of The Amputee Coalition of BC is to support and empower amputees through education, advocacy, physical activity and mentoring. Its vision to ensure that every amputee in British Columbia has the tools, guidance and support that will enable them to lead full and productive lives to the extent of their ability is in line with the mission and vision of End The Pain Project.

Plans are in the works for the two organizations to jointly operate an Amputee Re-Entry Centre in Richmond, B.C. starting in January, under the auspices of Dr. Don Nixdorf, a widely esteemed BC chiropractor and advocate for amputees. 

Keep watching this blog for the actual opening date and the services that will be provided to amputees.

Table-Top Mirror now available from ETPP for hand/arm amputees suffering Phantom Limb Pain

ETPP Table-Top Mirror in use

A Table-Top Mirror for Mirror Therapy use by hand/arm amputees suffering Phantom Limb Pain, has been designed and developed by Marty Moser, an End The Pain Project associate.  The easy-to-setup, portable Table-Top Mirror which measures 10"x13" when folded for storage, is constructed of sturdy but lightweight white cardboard and unbreakable acrylic mirror.

Priced at $20 + $6 postage, the Table-Top Mirror can be ordered through End The Pain Project.  Net proceeds fund mirrors for amputees in third world countries.

Cross Border Affair Wine Tasting Saturday, Oct 23, 3 pm Fundraiser for ETPP

A fun way to spend an afternoon: Like Washington wine? Or is it all BC for you? Tried the fruits of our local wine regions side by side? Neighbors, Okanagan Valley and the Columbia Valley are both evolving extensive fruit growing into a complex, comprehensive wine culture.

We're fierce local supporters on both sides - but what does your palate say? The wine tasting goal is to compare 5 BC and 5 Washington wines in an informative and entertaining setting. No pressure to swirl, sniff, spit or swill a certain way. Learn a little, try a lot and hopefully, find new favourite wines!

And the #1 Cross Border Wine Tasting door prize is fabulous! 2 tix to the Vancouver Playhouse Wine Fest 2011. $190 value! And opportunities to win other great door prizes!

All proceeds go to End The Pain Project - a non-profit helping amputees at home and abroad whose lives are impacted by phantom limb pain.

Tix $35: RSVP Samantha
Where: Point Roberts Marina 713 Simundson Drive -Upstairs Club

P.S. Don't forget your passport!

Beth Darnall, PhD, develops self-treatment tool for phantom pain

Beth Darnall, PhD, Assistant Professor, Department of Anesthesiology and Perioperative Medicine, has developed an instructional DVD to enable amputees to self-treat their phantom pain. Do It Yourself Mirror Therapy teaches patients how to use this evidence-based treatment at home, making it a cost-effective non-pharmacologic treatment for phantom pain.

“When mirror therapy is practiced, the brain is exposed to the image of the intact limb repeatedly and receives the message that both limbs are intact and functioning,” said Dr. Darnall. “When mirror therapy is used consistently over the course of one month, phantom pain may lessen or even resolve.”

Functional MRI studies show that positive results from mirror therapy are related to cortical restructuring in the brain. It is thought that a remapping of the body map in the brain reduces or eliminates any distortion that may have been created when the brain tried to reconcile the amputation.

“Our study findings are promising, and self-treatment is especially important where access to pain care is severely limited,” said Dr. Darnall. She is currently working with a global non-profit organization called End the Pain Project to bring mirror therapy tool kits to amputees in Vietnam and Cambodia. HealthSaas has made it possible to evaluate their progress from Portland.

Dr. Darnall recently presented an instructional session on mirror therapy to amputees and caregivers at the national conference of the Amputee Coalition of America. In October, an OHSU N.L. Tartar Trust Fellowship will fund her travel to the annual conference of the Egyptian Society for the Management of Pain where she will present her findings on self-delivered mirror therapy. While she is in Cairo, Dr. Darnall will also meet with researchers at Al-Ahzar University to discuss a collaborative comparative effectiveness study of phantom pain treatments that will include mirror therapy.

From OHSU School of Medicine News 9/9/10

HealthSaaS launches custom version of PainPHR 'Personal Health Record' a secure interactive online treatment tracking service for End The Pain Project

HealthSaaS, Inc specializing in web-based Sofware as a Service (SaaS) solutions with the cooperation of OHSU Department of Anesthesiology & Perioperative Medicine, has built a web-based Personal Health Record (PHR) Portal for End The Pain Project to specifically track the use of Mirror Therapy to reduce or eliminate Phantom Limb Pain in amputees.

End The Pain Project will offer the PainPHR to practitioners, rehabilitation centers, hospitals and NGO's in developing countries as a free secure online service. These registered users and their clients will have access to individual Pain Diaries 7 days a week, 24 hours a day anywhere in the world, providing there is an internet connection.

The PainPHR facilitates better communication between amputees and their healthcare providers. Patient-driven report data will help providers identify both effective and ineffective treatment. The providers may then make treatment modifications to improve efficacy and provide their clients with a more consistent and improved quality of life. 

Portable Collapsible Mirror Therapy Box

An invaluable upper limb recovery tool, a portable, collapsible and lightweight Mirror Box is offered by Reflex Pain Management Ltd., allowing rehabilitation exercises for amputees suffering Phantom Limb Pain, wherever and whenever. To avoid distortion, the unaffected limb should be held as close as possible near the mirror.
A lower-limb collapsible mirror box is under development and available in the near future.

Uncurling a Phantom Limb Contracture

Andrew T. Austin, respected NLP Master Practitioner, has found a way to uncurl or retract an upper phantom limb to enable effective mirror therapy.